We are in Bangalore now. Came here today morning. Tomorrow, we are meeting the ENT for Vignesh's tracheostomy assessment. Its a different city and a different hospital. So, there is always an increased tension. On the bright side, from both the previous assessments we had at the hospital here, we know that the doctors are experienced and know what they are doing.
The appointment is at 10.30 am tomorrow.So, they would be starting the procedure at 11 a.m. I'm scared not so much about the result of the assessment. Because, if not now, we would again try in 6 months time to decannulate. I'm more afraid of the mental trauma that my son would need to undergo. He has grown up so much since the last time we came here (that was in June last year). And, since his hospitalization in December, he gets agitated when we try to restrain him. Probably because, restraining him reminds of the numerous painful pricks he had at the hospital. I hoping that it would be less painful and traumatic to Vignesh tomorrow.
And, the most difficult part for us is to wait outside when the procedure is in progress. There have been too many bronchoscopies and too many disappointments before. Until the doctor comes out and says the result, we would be extremely tensed. Anyway, I'd make it clear to the doctor even before they start the procedure to go in for decannulation ONLY IF the swelling in the airway is completely cured.
Please pray for Vignesh. We really need it.
Would provide an update about the result of the procedure as soon as I can.
The appointment is at 10.30 am tomorrow.So, they would be starting the procedure at 11 a.m. I'm scared not so much about the result of the assessment. Because, if not now, we would again try in 6 months time to decannulate. I'm more afraid of the mental trauma that my son would need to undergo. He has grown up so much since the last time we came here (that was in June last year). And, since his hospitalization in December, he gets agitated when we try to restrain him. Probably because, restraining him reminds of the numerous painful pricks he had at the hospital. I hoping that it would be less painful and traumatic to Vignesh tomorrow.
And, the most difficult part for us is to wait outside when the procedure is in progress. There have been too many bronchoscopies and too many disappointments before. Until the doctor comes out and says the result, we would be extremely tensed. Anyway, I'd make it clear to the doctor even before they start the procedure to go in for decannulation ONLY IF the swelling in the airway is completely cured.
Please pray for Vignesh. We really need it.
Would provide an update about the result of the procedure as soon as I can.
This is Joyce. My hugs and prayers are with you. I so remember those broncoscopes and how hard the wait is. I know your heart just wants the trach to be gone but you do understand that if there is still any swelling don't risk it. Such a hard thing. I will be anxious to know what the doctors say.
ReplyDeleteYou are in both in my thoughts and prayers.
ReplyDeleteHugs,
Lisa
Sumithra just came back from the trach forum, and saw the decannulation was put on hold. Chin up Momma, and one foot in front of the other. It "will" happen just not this month.
ReplyDeleteEmbrace the lovely moments with your beautiful son and I am sending you a very large hug today my friend.
All the love in the universe Sumithra today and always,
Lisa